Breaking the Silence: Raymond’s Tuberculosis Journey of Hope and Resilience

Every fight against disease is more than a battle of medicines and diagnostics—it’s a fight for dignity, acceptance, and hope. In the case of tuberculosis (TB), this fight extends beyond hospital walls into homes, schools, and communities, where stigma and misinformation often create deeper wounds than the illness itself.

Around the world, TB continues to be one of the top infectious disease killers, claiming over a million lives each year. And for people living with HIV, the risk of developing TB is significantly higher due to weakened immunity. Yet, many stories of survival, courage, and advocacy often go unheard. However, we believe that sharing these stories is not only healing for those who tell them but also powerful for those who listen. These personal accounts break down stigma, challenge stereotypes, and remind us that behind every statistic is a human being fighting to live, thrive, and inspire others.

One such voice is Raymond Idoko, a public health advocate from Nigeria. Born HIV-positive and later diagnosed with TB, Raymond’s journey is one of resilience, self-discovery, and an unwavering commitment to making a difference. His experience sheds light on the challenges many young people face when living with HIV and TB—but more importantly, it highlights the strength they can find within themselves.

Here is his journey, in his own words.

My Journey as an HIV-Positive Tuberculosis Survivor

I was born HIV positive, and my parents didn’t know until much later. Back then, there was little knowledge about HIV, and stigma surrounded it. I found out I was HIV-positive in 2006 and began treatment. But soon after, I started coughing up blood and showing symptoms of TB. After running some tests, I was diagnosed with tuberculosis.

Coping with Tuberculosis

Coping with TB wasn’t as difficult as one might think, thanks to my parents’ support and the care I received from a health facility. However, the treatment was challenging, especially swallowing the large tablets every day.

The Importance of Adherence

As a young person, I struggled to understand why taking my medication on time was so important. It felt like swallowing a ‘big monster’ daily. But eventually, I realized that staying consistent with treatment was the key to getting better. My advice to others is simple: embrace consistency, and you’ll be amazed at the progress you can make.

Overcoming Stigma

Growing up, I faced stigma even within my own home. My parents, although well-intentioned, kept my HIV and TB status a secret. This led me to experience self-stigma. Over time, I realized that stigma is a myth we choose to believe—a myth that only has power if we allow it. I’ve made it my mission to challenge this myth and to advocate for public health, infectious disease awareness, and an end to stigma. A Message of Hope

To anyone facing similar challenges, I want to say this: You are only as strong as you think. Think greatly and become great. A limited mind can never feed a nation. Never believe you are not productive because you have TB or HIV. If you think that, remember my story. I am Raymond Idoko, a Nigerian, HIV-positive TB survivor, and I am living an inspiring life in public health. The will to live and survive lies in the choices we make. I choose to live. How about you?

Reflections and Why This Matters

Raymond’s journey isn’t just his own; it represents the reality faced by millions around the world. His resilience echoes the courage of countless young people who refuse to be defined by illness or stigma. In Health Volunteers, we are constantly inspired by such stories, and they drive us to continue our work in mobilizing youth to become changemakers in their communities.

Why does this matter? Because the fight against TB cannot be won by healthcare systems alone. It requires community action, awareness, and youth leadership. When young people step forward, as Raymond did, they bring energy, innovation, and credibility. They have the power to challenge social norms, debunk myths, and foster a culture of empathy and inclusion.

By sharing stories, educating others, and standing up against stigma, youth can become catalysts for lasting change. Whether you are a student, volunteer, or someone who has personally experienced TB, your voice matters. Together, we can build a movement that not only raises awareness but also saves lives.

Final Thought

As Raymond says: “The will to live and survive lies in the choices we make." Today, you have a choice. Will you be part of the movement to end TB? Will you stand up, speak out, and support those in need? Together, we can turn stories of survival into a shared mission for health, dignity, and hope.

In 2023 alone, 10.8 million people fell ill with tuberculosis. Behind each number is a face, a family, a story of struggle—and strength. Every person impacted by TB has a journey worth sharing, filled with lessons of resilience, courage, and the will to survive. When we come together as a community whether as advocates, volunteers, or simply compassionate listeners we give power to these stories. We break the silence, shatter stigma, and offer hope where it’s needed most.

Now is the time to act. Be part of the Youth Against TB movement. Together, we can create a TB-free future where no one is left behind.

Be the Change: Join the Youth Against TB Movement! This World TB Day 2025, let’s come together and take action. Yes! we can end TB if we act now! Health Volunteers is actively working to support India’s TB elimination goals and empower youth through the Youth Against TB campaign. Become a volunteer, take the TB pledge - Pledge, and enroll in our free course- Tuberculosis -101 to gain the knowledge and skills needed to make a difference. Together, we can turn this vision into reality. Join us today to create a TB-free future where no one is left behind. Let’s unite for a healthier, stronger India—because the fight against TB starts with you.

Join Now

#TBMuktBharat #EndTB #HealthVolunteers #YouthAgainstTB